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Comprehensive
Resources
These resources provide
general information about the conditions and disabilities
which are considered when reviewing a child's medical
history and identification for entry into a special education
program.
Specific
Disorders:
Anxiety:
A disorder characterized by exaggerated tension without apparent cause
which may result in panic or social phobia.
Attention
Deficit Disorder : A severe difficulty in
focusing and maintaining attention. This lack of attention
often leads to
learning and behavior problems at home, school, and work.
Also called Attention Deficit Hyperactivity Disorder
(ADHD).
Autism: A category of disability that significantly
affects social interaction, verbal and nonverbal communication, and educational
performance. Autism is a severely
incapacitating, lifelong developmental disability which
typically appears during the first three years of life.
Symptoms may include immature rhythms of speech, abnormal
responses to sensations and slow or non-development of
physical, social and learning skills.
Cognitive Disorders:
Condition, usually
present at birth, that results in below-average intellectual skills
and poor adaptive behavior.
Conduct
Disorders: A
persistent pattern of behavior that involves violation of the rights of others,
disobedience, destructiveness, jealousy, boisterousness, inadequate feelings of
guilt.
Deaf and Hard of Hearing:
Disability
affecting the ability to hear including the uncorrectable
inability to hear well.
Hearing impairment
is defined by IDEA as "an impairment in hearing, whether
permanent or fluctuating, that adversely affects a child's
educational performance." Deafness
is defined as "a hearing impairment that is so severe that the
child is impaired in processing linguistic information through
hearing, with or without amplification."
Disassociative
Disorders:
Conditions in which
normally integrated consciousness or identity is split or altered,
as in Post Traumatic Stress Disorder and psychogenesis amnesia.
Down
Syndrome:
Down syndrome is the most
common and readily identifiable chromosomal condition
associated with mental retardation. It is caused by a
chromosomal abnormality: for some unexplained reason, an
accident in cell development results in 47 instead of the
usual 46 chromosomes. This extra chromosome changes the
orderly development of the body and brain. In most cases,
the diagnosis of Down syndrome is made according to
results from a chromosome test administered shortly after
birth.
Dyslexia:
Dyslexia is a neurologically-based,
often hereditary, disorder which interferes with the
acquisition and processing of language. Varying in degrees
of severity, it is manifested by
difficulties in receptive
and expressive language, including phonological
processing, in reading, writing, spelling, handwriting,
and sometimes in arithmetic. Dyslexia is not a result of
lack of motivation, sensory impairment, inadequate
instructional or environmental opportunities, or other
limiting conditions, but may occur together with these
conditions. See also Learning Disabilities.
Eating
Disorders:
These
disorders are characterized by a condition in which individuals
literally starve themselves or engage in a destructive pattern of
excessive overeating followed by vomiting or other
"purging" behaviors to control their weight.
Fetal Alcohol Syndrome:
A
pattern of physical and intellectual abnormalities in infants whose mothers
drank an excessive amount of alcohol during pregnancy.
Learning Disabilities:
Disorders that impede
academic progress of people who are not mentally retarded or
emotionally disturbed. Mental
Retardation:
People
with mental retardation are those who develop at a below
average rate and experience difficulty in learning and
social adjustment. Mental retardation means significantly
sub-average general intellectual functioning existing
concurrently with deficits in adaptive behavior and
manifested during the developmental period, that adversely
affects a child's educational performance. It is not a
disease, nor should it be confused with mental illness.
Children with mental retardation become adults; they do
not remain "eternal children." They do learn,
but slowly, and with difficulty.
Mood
Disorders: Mood
Disorders include a variety of disorders that often involve a
depressed
mood or a loss of interest or pleasure in daily activities
Substance
Abuse: A category related to
misuse and abuse of alcohol
and other drugs.
Suicide: Suicide is not a
distinct disorder. Rather, it is a symptom of serious mental
disorders such as depression or bipolar disorder,
where one attempts to take their life.
Tourette's
Syndrome: A disorder that may
include multiple motor tics and/or uncontrolled vocalizations.
SPECIFIC CONDITIONS RESOURCE
LINKS:
Comprehensive Resources
Disability Links
This Web site was constructed in 1996 by a father of a
multi-handicapped son. IRCS ( Internet Resources for
Special Children) features thousands of links to special
education categories,
an online community and a constantly
updated news section.
Internet Mental
Health General
The goal of this site is to improve the understanding, diagnosis,
and treatment of mental illness throughout the
world. Includes an extensive list of definitions for all mental health
disorders.
Anxiety
Anxiety Organizations
Mental Help Net provides online contacts for several organizations dedicated to prevention and support of stress, panic, anxiety, and psychosomatic
disorders.
Internet Mental Health Anxiety Links
Internet Mental Health has an extensive site for anxiety disorders including Panic Disorder,
Agoraphobia, Social Phobia, Specific Phobia (formerly
Simple Phobia), Obsessive-Compulsive Disorder, Posttraumatic Stress Disorder, Generalized
Anxiety Disorder and Acute Stress Disorder.
Anxiety Self Help
Page
This Web site is maintained by Christine Evans from Sydney
Australia and includes many self help resources
and a chat room.
Panic Anxiety
Education Management Services
An excellent site for people looking for basic information on panic attacks, anxiety
and anxiety disorders.
Selective Mutism Group
Selective
Mutism (formerly called Elective Mutism) is a psychiatric disorder
that is
characterized by consistent failure to speak in SELECT
social settings in which there is an expectation to speak; such as
school. This Web site promotes research and awareness of this
disorder.
The Anxiety
Panic Internet Resource
This is a self-help network dedicated to the overcoming and cure of
debilitating anxiety including irrational
fears or phobias, obsessive/compulsive behaviors, or extreme shyness.
The
Anxious Child
This site is sponsored by the American Academy of Child &
Adolescent Psychiatry (AACAP)
and includes a set of
information sheets which provide important information on anxiety, phobias, and
depression in children and
adolescents.
Attention Deficit Disorder
ADD/ADHD in Toddlers and Preschool Years
This site, created by George Bailey, is dedicated to
helping parents and teachers deal more effectively with
children with ADD/ADHD.
ADDNet
The purpose of ADDNet is to be a
common point of reference for information and intelligent
debate on AD/HD in the
United Kingdom.
Children
Who Can't Pay Attention (ADD)
This site is sponsored by the American Academy of Child &
Adolescent Psychiatry (AACAP)
and includes a set of information
sheets which provide important information on Attention Deficit
Disorder.
The National Attention Deficit
Disorder Association
The National Attention Deficit Disorder Association is an
organization built around the needs
of adults and young adults with ADD and ADHD.
Understanding the Child With ADHD
This Web site provides information for parents about Attention
Deficit Hyperactivity Disorder
from
the American Academy of Pediatrics.
Children and Adults with
Attention-Deficit/Hyperactivity
This Web site is a national advocacy organization for ADD and has information on the
organization plus many resources on ADD on the Internet.
Autism
The Autism Link
A compilation of links to autism-related sites all over the world. Every link
contains a short
description of the
linked site.
American
Hyperlexia Association
American Hyperlexia Association - an unusual syndrome that may
or may not be related to the autism spectrum
disorders.
Applied
Behavior Analysis Resources
From a father of an autistic child, this information concerns
teaching methods that are a
branch of applied
behavior analysis (ABA), often called behavioral intervention, also called
by some the "Lovaas
method."
Asperger's
Disorder Homepage
Comprehensive site regarding Asperger's Disorder, maintained by
Kaan R. Ozbayrak, MD,
University of Massachusetts
Medical Center Department of Psychiatry.
Autism PDD Network
The purpose of this site is to help professionals and parents
with key issues associated with
the nature of autism
and the kinds of approaches to diagnosis, treatment and care that are
likely to
be effective in meeting the needs
of autistic individuals and their families.
Autism Resource Page
A comprehensive, state by state, collection of resources and
organizations.
Autism Society of
America
Autism Society of America is to promote lifelong access and
opportunities for persons within
the autism spectrum
and their families.
Cognitive Disorders
Dementia Web
The Dementia Research Group & CANDID (Counseling
and Diagnosis in Dementia) site,
based in England at The
National Hospital for Neurology and Neurosurgery, and supported
by The Institute
of Neurology and The Division of
Neurosciences, Imperial College School of
Medicine. Dementia Web provides
support, advice, information and
education for professional and family care-givers.
J. P. Das
Developmental Disabilities Centre
The Centre was established in the Fall of 1967 with a grant
given to the University of Alberta
by The Canadian
Association for Mental Retardation. Its current activities include: research,
student training, publication, and
selected clinical services for children and adults with mental retardation and
other disorders that affect learning
and originate in the childhood.
Alzheimer's Web
This site contains information about drugs for the treatment of
Alzheimer's disease, laboratories conducting
research into the disorder, papers, journals and FAQs.
Family
Village
Family Village hosts informational resources on specific diagnoses,
communication connections, adaptive products and
technology, adaptive recreational activities, education, worship, health issues,
disability-related media and
literature, and much, much more!
FRAXA Research Foundation
Fragile X Syndrome is the major inherited cause of mental
retardation.
The Arc of the United States
The national organization for people with mental
retardation and related developmental
disabilities and
their families.
Waisman Center
on Mental Retardation and Developmental Disabilities
One of 14 national centers dedicated to the advancement of
knowledge about human
development and developmental disabilities. This
site has a tremendous number of links
to
related information.
Conduct
Disorders
AACAP
Conduct Disorder
American Academy of Child and Adolescent Psychiatry fact sheet on behaviors
associated
with conduct disorders.
Pediatric
Psychiatry Pamphlets by Dr.Chandler
This pamphlet describes the diagnosis and treatment of both Oppositional Defiant
Disorder
(ODD) and Conduct Disorder (CD) in Children and Adolescents. The
information is aimed at
caregivers/parents and is written
by a pediatric psychiatrist, Dr. Jim Chandler.
Disruptive
Behavior Disorders by At Health, Inc.
At Health, Inc. provides a well-organized newsletter or a variety of mental
health topics.
This issue deals
with conduct disorders including resource links and articles.
Conductdisorders.com
This site was started in mid-90's when a parent, in desperation, reached out to
other parents
by starting a message board that supported families with
struggling teens. The very active
discussion forum can provide excellent
"parent-to-parent" help for children with disruptive behavior.
Deaf and Hard of Hearing
American Society for Deaf Children
American Society for Deaf Children is a national organization providing
information and
support to families raising
children who are deaf or hard of hearing.
Deaf Counseling Advocacy and
Referral Agency
Services for deaf and hard of hearing people including social
services, information,
referral and job services.
Deafness/Hard
of Hearing
About.com provides general information links compiled by Jamie Berke, a deaf
person.
Gallaudet Research Institute
The Gallaudet Institute is internationally recognized for its leadership in deafness-related
research. GRI researchers gather and
analyze data concerning the demographic and
academic characteristics of deaf and
hard of hearing populations,
primarily to provide
information needed by educators in the field.
Genetics
of Deafness
Scientists have recently identified human genes critical
for hearing. Mutations in one gene,
DFNA 1, cause deafness
in children. How does the product of DFNA 1 gene
contribute to
the hearing process? How was the gene found?
What are the steps in doing a scientific
research study?
Find out at this site.
HiP Magazine
HiP Magazine's online version for deaf and hard-of-hearing kids and
their friends. Learn more
about HiP Magazine, read
personal stories and much more.
RNID For Information on Deaf
and Hard of Hearing People
The Royal National Institute for Deaf People, is the largest
charity representing the 8.7 million
deaf and
hard of hearing people in the UK.
Sign Language Dictionary
HandSpeak™ is the largest, fast-growing popular visual language
dictionary online.
Dissociative Disorders
National Center for PTSD
This Web site is provided as an educational resource concerning Post
Traumatic Stress
Disorder (PTSD) and other enduring consequences of traumatic
stress.
Sidran Traumatic Stress
Foundation
Sidran is a nonprofit charitable organization devoted to
education, advocacy, and research to
benefit people who
are suffering from injuries of traumatic stress.
Multiple Personality
Disorder and Dissociative Identity Disorder
Multiple Personality Disorder resource for published papers, books,
course manuals, new
ideas, glossary of terms and definitions supported by Dr. Ralph Allison's
research with
actual patients.
The American Academy of Experts
in Traumatic Stress HomePage
Increasing awareness of the effects of trauma and improving the
quality of intervention for
survivors, this referral
network supports local professionals who work regularly with survivors.
The Colin A. Ross Institute
The Colin A. Ross Institute was formed to further the
understanding of psychological trauma
and its consequences by
providing educational services, research, and clinical treatment of
trauma based
disorders.
The International Society for the
Study of Dissociation
The ISSD brings together professionals dedicated to the search for
answers to improve the
quality of life for all
patients with dissociative disorders.
Down Syndrome
Down Syndrome Home Page
This is the original World Wide Web site composed of
contributions from experienced
professionals and knowledgeable
parents who are subscribers to the Down Syndrome listserv
and newsgroup, by the
parents of a wonderful son who was
diagnosed with Down Syndrome
at birth in 1993.
National
Association for Down Syndrome
National Association for Down Syndrome (NADS), a
not-for-profit organization, was founded in Chicago in
1961, by parents of children with Down Syndrome who felt a
need to create a better environment and bring about
understanding and acceptance of people with Down Syndrome.
National
Down Syndrome Society
The
National Down Syndrome Society was established in 1979 to ensure
that all people with
Down
Syndrome have the opportunity to achieve
their full potential in community life.
Dyslexia
Adult
Dyslexia Organization
The Adult Dyslexia Organization is a British organization that
supports men and women
who have dyslexia.
Dyslexia
Scientific American article on learning disabilities by Sally E. Shaywitz.
Dyslexia,
Learning Disabilities and Literacy Resource Site
This resource is provided by The Greenwood School, a
pre-preparatory boarding school for
boys with dyslexia and
related language disorders, and The Greenwood Institute, offering
teacher
training and home schooling support
programs for teachers and parents of students
with dyslexia and related language
disorders.
Dyslexic
Browse this company's (located in U.K.) selection of software,
gadgets and other products to
assist people with dyslexia, visual
impairments and other disabilities.
International Dyslexia
Association
International Dyslexia Association is an international,
non-profit organization dedicated to the
study and
treatment of the learning disability, dyslexia.
Eating Disorders
All About Eating
Disorders - Mental Health Net
Learn all about eating disorder information and find self-help resources online.
Anorexia
and Bulimia Nervosa
This page is part of the comprehensive NOAH (New York Online
Access to Health) site,
and includes lots of general
information about anorexia and bulimia. Information offered in
Spanish as well.
Center for Eating
Disorders
The professionals at the Center for Eating Disorders, in Towson,
Maryland have helped
thousands of people confront their underlying stress and ease their obsession
with food,
weight, and appearance.
Eating Disorder Recovery
Online
Eating Disorder Recovery Online provides services and important
information to assist people exhibiting
characteristics of disordered eating, especially compulsive overeating, binge
eating,
and body image distortion.
Eating Disorders Online
Eating Disorders news, stories, poetry and much more has been organized with the
viewer
in mind. Excellent well-rounded information is available at this Web
site.
Mirror, Mirror:
Eating Disorders
This Web site is managed by an eating disorder survivor
and is dedicated to those who are
suffering from or recovering from an eating disorder.
Fetal Alcohol Syndrome
Fetal Alcohol Support
The Fetal Alcohol Support Network is located in Canada.
MEL: Fetal
Alcohol Syndrome (FAS)
This Web site hosts FASLINK: a mailing list for people interested in Fetal Alcohol
Syndrome/Fetal Alcohol Effects.
National Organization on Fetal
Alcohol Syndrome
NOFAS offers information on conferences, current events, and publications
involved in
the prevention and treatment of FAS.
University of
Washington Fetal Alcohol and Drug Unit
The Fetal Alcohol and Drug Unit is a research unit dedicated to
the prevention, intervention and treatment of Fetal
Alcohol Syndrome (FAS) and Fetal Alcohol Effects (FAE).
Learning Disabilities
LD Pride
Inspired by Deaf Pride, this Web site has been developed as an
interactive community to
support and children and adults with learning
disabilities.
LD Resources
This site contains resources for people with learning
disabilities.
NIMH booklet
on Learning Disabilities
The National Institute of Mental Health booklet provides up-to-date information on
learning
disabilities and the role of NIMH sponsored research in
discovering underlying
causes and effective treatments.
Schwab Foundation for
Learning
Information, support and hope for parents and educators helping
children with learning
disabilities.
The Learning Disabilities
Association
LDA is a national, non-profit organization with a purpose to
advance the education and
general welfare of children
and adults of normal or potentially normal intelligence who manifest disabilities of a perceptual, conceptual, or
coordinative nature.
Mental Retardation
American Association
of Mental Retardation
AAMR promotes progressive policies, sound research, effective
practices, and universal
human rights for people with intellectual
disabilities. American
Journal of Mental Retardation
Mental Retardation (MR) is a practitioner's journal of
research, reviews and opinions.
President's
Committee on Mental Retardation
This federal advisory committee was established by presidential
executive order to advise
the President of the United States and the
Secretary of Health and Human Services on issues concerning citizens
with mental retardation. National
Library of Medicine
A searchable database on the syndromes and specific
congenital abnormalities associated
with mental
retardation. UCLA
Mental Retardation Research Institute
This institute at the University of California in Los
Angeles is dedicated to research on the
causes and effects
of mental retardation.
Mood
Disorders
Andrew's Depression Page
Andrew Fineberg provides personal and insightful information about depression. This site
includes facts on symptoms and treatment, and depression links.
Depression Alliance
Depression Alliance is a British charity offering help to people with depression, run by
sufferers themselves. This site contains useful information about different types of
depression, medical treatment and self help.
Depression Disorder and Treatment
Mental Health Net's comprehensive overview of depression.
Depression is a Treatable Illness: a Patient's Guide
This booklet talks about major depressive disorder, which is only one form of depressive
illness published by the National Library of Medicine.
Dr. Ivan's Depression Central
Maintained by Dr. Ivan Goldberg, this site is Internet's central clearinghouse for
information
on all types of depressive disorders and on the most effective treatments for individuals
suffering from Major Depression, Manic-Depression (Bipolar Disorder),
Cyclothymia,
Dysthymia and other mood disorders.
Manic Depression/Bipolar Disorders
Links to books, leaflets, and other information regarding Depression, Bipolar Disorder,
and
other mental illnesses.
Pendulum's Bipolar Disorder Portal to the Web
The information at this Web site is for consumers, family members and mental health
workers to make informed decisions about the care and treatment of bipolar
disorder.
The Write Brain
Steven Thow's Mental Health Resources is a very comprehensive site for depression/bipolar
disorders.
You Asked About... Adolescent Depression
Internet mental health links have been organized by Maurice Blackman, MB,
FRCPC
who is a clinical
professor and director at the University of Alberta Hospitals,
Edmonton, Alberta.
Substance
Abuse
Substance Abuse: Alcohol, Tobacco, and Other Drugs Links
This Web site links to general and comprehensive resources
on alcohol, tobacco and other drugs.
Growing Up Drug-Free: A Parent's Guide to Prevention
A public domain publication by the U.S. Department of Education's Safe and Drug-Free Schools
Program.
Higher Education Drug Abuse Center
Funded by the U.S. Department of Education, the Higher Education Center provides support to
all institutions of higher education in their efforts to address alcohol and other drug
problems.
National Association for Children of Alcoholics
The National Association for Children of Alcoholics (NACoA). One of the major activities of
NACoA is to produce educational materials to enable adults to help these children. Resources
available through NACoA include a variety of curricular packages, including videos, posters,
comic books, and guides for teachers, physicians and other professionals who touch children's
lives.
National Inhalant Prevention Coalition Website
The NIPC serves as an inhalant referral and information clearinghouse, stimulates media
coverage about inhalant issues, develops informational materials, produces ViewPoint (a
quarterly newsletter), provides training and technical assistance and leads a week-long
national grassroots inhalant education and awareness campaign.
National Institute of Drug Abuse
NIDA supports over 85 percent of the world's research on the health aspects of drug abuse and
addiction. The site provides scientific advances in the understanding and treatment of drug
abuse, including a recent nation-wide survey that released 1998 data for alcohol and drug use
by adolescents.
Stanton Peele Addiction Web Site
Stanton Peele Addiction Web Site is financed through a grant from the Drug Policy Foundation and provides an unique opinion to the problem of addictions.
The National Clearinghouse for Alcohol and Drug Information
The site contains a massive amount of information on topics relating to alcohol and drug
abuse and addiction. There links to hundreds of fact sheets on these topics, an online forum,
community involvement tools, and much more.
The Treatment Improvement Exchange
The Treatment Improvement Exchange (TIE) is a resource sponsored by the Division of State
and
Community Assistance of the Center for Substance Abuse Treatment to provide information
exchange between alcohol and substance abuse agencies.
Suicide
Suicide:
SAVE
SAVE was started in 1989 when five suicide survivors (people who
have experienced the loss of a loved one to suicide) met and agreed
on the need for an organization.
Suicide
and Sudden Loss: Crisis Management in the Schools
An ERIC publication on managing suicide or sudden loss among student
populations.
National
Strategy for Suicide Prevention
Several organizations have joined together to create this
comprehensive listing of resources, statistics and relevant information about suicide.
Tourette's
Syndrome
Guide
to the Diagnosis and Treatment of Tourette Syndrome
Internet mental health Web site regarding Tourette Syndrome treatment and
diagnosis.
The
Facts About Tourette Syndrome
Described as the original, although not official, Tourette Syndrome
web site.
Tourette
Syndrome Association, Inc
TSA is the only national organization dedicated to providing
up-to-date, accurate information
about Tourette Syndrome.
Tourette's
Syndrome: TS+
Maintained by Leslie E. Packer, PhD, this Web site provides resources for students
and teachers in managing Tourette's Disorder.
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